Texas Council on Alzheimer's Disease Biennial Reports
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September 1, 2006
MISSION
The Texas Council on Alzheimer's Disease and Related Disorders is legislatively established as the state's advocate for persons with Alzheimer's disease and those who care for them.
To recommend needed action for the benefit of persons with Alzheimer's disease and related disorders and their care givers.
To disseminate information on services and related activities for persons with Alzheimer's disease and related disorders to the medical and healthcare community, academic community, primary family care givers, advocacy associations, and general public.
To facilitate coordination of services and activities of state agencies, other service providers and advocacy groups relating to persons with Alzheimer's disease and related disorders.
- To advocate statewide coordinated research and to increase dollars allocated for research to benefit persons with Alzheimer's disease and related disorders.
Goals/Objectives
| I. |
1. To create a biennial legislative agenda. A. Identify needs. B. Identify sponsors. C. Develop legislative language. D. Coordinate with overlapping agendas of other groups. E. Advocate to members of legislature. F. Evaluate outcome and report back. G. Address reimbursement issues. |
| II. |
1. To enhance information that is available within the state's Alzheimer's disease program. A. (Staff will) assess current information available. B. (Staff will) identify needs (based on requests from public). C. (Council members) will obtain updated information (caregiver, support information, etc.). D. (Council members) will obtain updated brochures. E. (Council members) will obtain referral sources for professionals. F. (Council members) will obtain research information (ADC database, ADEAR, Drug Database from Alzheimer's Association).
2. To provide periodic statewide educational conferences. A. Determine focus and date of conference.
3. To co-sponsor other regional and statewide conferences.
4. To further develop state web site and create an educational brochure about the Council.
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| III. |
1. To identify ways to strengthen collaboration and coordination among state agencies, other service providers and advocacy groups relating to persons with Alzheimer's disease and related disorders. A. Continue to invite representatives of the Alzheimer's Association to Council meetings. B. Educational presentations to Council members. C. Identify service providers and state agencies and define their purpose and interest. Identify stakeholders and their roles and how they can compliment one another. Include as web site links. D. Identify gaps and barriers in services. |
| IV. |
1. To establish Alzheimer's disease research as a line item in the state budget. A. Identify stakeholders. B. Coordinate efforts with stakeholders.
2. To create additional funding for Alzheimer's disease activities. A. Identify potential funding sources. B. Create/build relationship with funders. C. Develop/write proposals.
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