Sickle Cell Disease - So Your Baby Has The Sickle Cell Trait

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boy flying a kite with the caption no your baby does not have sickle cell anemia

 

  1. What is sickle cell trait?
    To have sickle cell trait means one carries a gene for sickle cell anemia which can be passed along to his/her children. As a carrier of this gene your baby has red blood cells that contain some sickle hemoglobin, but far less than the person with sickle cell anemia. (Hemoglobin is in red blood cells and carries the oxygen to your body. Sickle hemoglobin is an abnormal type of hemoglobin.)

    In most cases people with sickle cell trait lead completely normal lives. It is important that your doctor knows your baby has sickle cell trait.

  2. How did my baby get sickle cell trait?
    Getting sickle cell trait is like getting the color of ones eyes, it is inherited from parents. Your baby inherited a normal hemoglobin gene from one parent and an "S" or sickle gene from the other parent.
  3. Will my baby have sickle cell anemia?
    NO! Sickle cell trait will not turn into sickle cell anemia.
  4. Will my baby become anemic from having sickle cell trait?
    Usually a person with sickle cell trait does not become anemic and leads a healthy and normal life and requires no treatment.
  5. How long will my baby have the trait?
    Just as your baby will have the same color eyes, skin, and hair, he/she will always have sickle cell trait.
  6. Is sickle cell trait contagious?
    NO! Sickle cell trait is not contagious. You cannot catch sickle cell trait like measles or a cold. Sickle cell trait is inherited from parents.
  7. Will I have a baby with sickle cell anemia?
    No one will know until you get tested. The fact that your baby has the trait tells us that at least one of the parents has the trait (either mother or father). If only one parent has the trait then they CANNOT have a baby with sickle cell anemia. If both parents have sickle cell trait then each baby has a 25% chance (or 1 in 4) of having sickle cell anemia.

     

    mother and father with trait one child with normal hemoglobin one child with sickle cell disease two children with trait
  8. Should parents be tested for sickle cell?
    YES! Now that you know your baby has sickle cell trait it is important that both parents and all other children be tested.

    It is recommended that the blood test be repeated at about 4 months of age to confirm that your baby does have sickle cell trait. Blood from the baby, parents, brothers, and sisters may be sent by the doctor or clinic to the Health Department laboratory at that time.

Why was my baby tested for
sickle cell anemia?

SICKLE CELL TRAIT is found in about one of every ten black Americans. It is also found in Mexican Americans, and white Americans, especially those whose families originally came from Turkey, Italy, Greece, Spain, and other Latin American or Mediterranean countries.

On November 1, 1983, the Texas Department of State Health Services, Newborn Screening Laboratory began screening all babies born in Texas for sickle hemoglobin, as a part of the newborn screening testing.

 

baby in a high chair with a bib on

 

BE SMART!
KNOW YOUR HEMOGLOBIN TYPE  


For more information about the Newborn Screening Program please contact:
Texas Department of State Health Services
Newborn Screening Unit M-555
1100 West 49th Street
Austin, Texas 78756
MC 1918
Phone: 1-800-252-8023, ext. 3666 

Last updated February 25, 2011