Sickle Cell Resources

Sickle Cell: About  ·  Types & Complications  ·  Trait  

Sickle Cell Specialists in Texas 

Videos

Living with and Managing Sickle Cell Disease

The Common Good: Above The Crisis features people sharing how chronic illness can bring mental health challenges. 

Sickle Cell Options Video Library shows individuals with sickle cell, caregivers, stakeholders, and healthcare providers.

Transitioning Stories

Pediatric Hemoglobinopathy Consultants (PDF)

Genetic Services Provider List

Educational Information 

American Society of Hematology 

Centers for Disease Control and Prevention 

National Heart, Lung, and Blood Institute 

Sickle Options - website developed based on input from persons living with sickle cell disease and their caregivers

Sickle Options - sitio web desarrollado con aportaciones de personas que viven con la enfermedad de células falciformes y sus cuidadores (Español)

Publications

Sickle Cell Management

Evidence-Based Management of Sickle Cell Disease: Expert Panel Report, 2014 – Guidelines to help people living with sickle cell disease receive appropriate care by providing the best science-based recommendations to guide practice decisions. This publication was released by the National Institutes of Health.

The Sickle Cell Disease Treatment Demonstration Program was funded by the United States Congress in 2004 to improve the care of people with sickle cell disease. The 2017 congressional report details the many activities, outcomes, lessons learned and recommendations stemming from this work. 

Direct Service and Support Organizations

Direct Service Organizations
Name  City PhoneEmail 
Sickle Cell Association of Texas
Marc Thomas Foundation 
Austin 512-458-9767 or
877-994-4673 (toll free) 
info@sicklecelltx.org  
Houston 713-481-1295   
info@sicklecelltx.org 
San Antonio 210-899-3928
info@sicklecelltx.org
Maroon 9  Fort Worth 817-797-2526
info@maroon9sicklecell.org
Sickle Cell Association of Houston Houston 832-930-7224care@sicklecellhouston.org


Support Organizations
Name City Phone Email 
Sickle Cell Disease Association
of North Texas
Fort Worth817.882.0990
Use form on Contact page.
As One FoundationKaty832-308-9984
info@asonefoundation.org
Chris Johnson FoundationSugar Land 832-721-8998
info@chrisjohnsonfoundation.org
The Otis Uduebor
Sickle Cell Foundation
Rowlett 800-455-8949
contactus@theotisfoundation.org
SOS Parent Support GroupPearland 832-409-7671
Use form on Contact Us page.
Starlight Children’s FoundationLos Angeles, CA 310-479-1212
Use form on Contact page.
Sickle Cell Disease
Association of America
Baltimore, MD 800-421-8453
admin@sicklecelldisease.org

 Transitioning to Adult Care


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External links to other sites are intended to be informational and do not have the endorsement of the Texas Department of State Health Services. These sites may also not be accessible to persons with disabilities. 

Last updated December 5, 2018