It is the goal of the Newborn Screening (NBS) Clinical Care Coordination Program to decrease the morbidity and mortality of infants born in Texas through customer-oriented, high quality newborn screening follow-up, case management and outreach education.
UPDATE – Effective September 1, 2014: Newborn Screening for Critical Congenital Heart Disease in Texas
Beginning September 1, 2014, Reporting of Critical Congenital Heart Disease (CCHD) is mandatory in Texas. House Bill 740, 83rd Legislature Regular Session, 2013, added CCHD to the required Texas newborn screening panel. The Department of State Health Services (DSHS) has developed Texas Administrative Code rules for CCHD screening located in Chapter 37 §37.75 – 37.79.
Birthing facilities, hospitals, and physicians can utilize the CCHD toolkit (see link below) to assist with implementing CCHD screening. The toolkit was developed through the Texas Pulse Oximetry Project with support from DSHS. It provides educational and technical information on screening for CCHD, including the screening algorithm, brochures, and other information for physicians and nurses.
CCHD Required Report Form
Newborn Screening for CCHD will require the reporting of confirmed cases to DSHS. The form to report confirmed cases is located at the CCHD Reporting Form link below. Completed forms can be faxed or mailed to DSHS as follows:
FAX Number: (512) 776-7593
Attention: CCHD Program
Attention: CCHD Program
DSHS Newborn Screening Genetics Branch
P.O. Box 149347, MC 1918
Austin, Texas 78714-9347
CCHD Reporting Form
Free CE Accredited CCHD Course Available
The Texas Health Steps Online Provider Education module Critical Congenital Heart Disease will educate physicians about the need for early detection and intervention of CCHD in newborns, the protocol for conducting the screen, and what diagnostic testing should be performed in response to a positive screen. Providers will also learn about explaining the screening test to parents of a newborn and the role of the medical home in ensuring that the baby was appropriately screened and received any necessary follow-up.
Critical congenital heart disease (CCHD) is one of the leading causes of death in infants less than one-year old. Each year in the United States, 4,800 infants (2/1000 live births) are born with CCHD. Early diagnosis and timely intervention can significantly reduce morbidity and mortality and can lead to better outcomes.
Any questions regarding CCHD screening can be e-mailed to firstname.lastname@example.org or call Monica Molina, Newborn Screening Ombudsman, at (512) 776-3386.
Genetics Conference 2014
The 2014 Genetics Conferences, Newborn Screening: Tales from the Crib, have concluded. The conferences took place in San Antonio, Dallas and Austin starting July 26, 2014 and all three conferences were well received. The conferences were well attended with a lot of enthusiasm from the conference attendees. The Newborn Screening program is grateful to the fabulous speakers who shared their expertise during the conferences. We ask attendees to help improve future conferences by completing the online evaluation.
Continuing Education Credits:
Certificates will be awarded to attendees who signed attendance sheets, turned in completed evaluations, and turned in the certificate of successful completion. Those attendees will receive their CE certificates within 6-8 weeks after the end of the event. Please contact Swift Solutions, conference organizer, for any questions at email@example.com or call 512-451-8700.
Newborn Screening Advisory Committee New Members
Two new members of the Newborn Screening Advisory Committee have been appointed by Dr. David Lakey, DSHS Commissioner: Dr. Thomas M. Zellers and Ms. Aida Gonzalez. Visit the Newborn Screening Advisory Committee Membership page for more details.
Newborn Screening In-Service Education
Newborn Screening (NBS) in-service education is designed to provide general information on the NBS program, genetic disorders screened for in Texas, specimen collection, the importance of early detection & treatment, and resources available to assist health care providers participating in newborn screening. In-service face-to-face trainings are generally for audiences of 15 or more.
Now available FREE Live Web Conferencing
Webinar trainings cover general information on the NBS program and are designed for small to mid-size groups. The webinar is a Web-based presentation that is transmitted over the Web, and allows participants to view attached documents and applications electronically from any computer. During the webinar, the Educator will present information regarding the NBS program, and the webinar format allows for open discussion dialogue and questions. Please contact Tasha Reese, NBS Educator to schedule in-service education for your organization.
Texas Department of State Health Services
Newborn Screening Unit
PO Box 149347 MC 1918
Austin, TX 78714-9347
1-800-252-8023 ext. 3957